MINIMUM DATA SET FOR CYSTIC FIBROSIS REGISTRY: A CASE STUDY IN NORTHWEST IRAN

Minimum Data Set for Cystic Fibrosis Registry: a Case Study in Iran

BACKGROUND over the last 25 years several national registries of CF have been set up. Such systems can be very useful in providing an integrated resource for improving patient care and conducting research on the disease. Minimum Data Set is a common set of data items that should be used to collect and report data in the registry. The principal aim of this research was to determine minimum data ...

designing a minimum data set for national cancer registry in iran

designing a minimum data set for national cancer registry in iran     sadoughi f [1] , safdari r [2] *, meraji m [3] , ramzan ghorbani n [4] , ghazisaeedi m [5]     received: 9 jul , 2013 accepted: 21 sep , 2013     abstract   background & aims : due to the widespread increase of cancer diseases, cancer registries as foundations for a struggle plan against the disease have been established. the...

A minimum data set for chronic venous disease

Cystic fibrosis mortality: registry data of cystic fibrosis.

BACKGROUND The Cystic Fibrosis Foundation has been collecting mortality and other data on cystic fibrosis patients from over 100 U.S. clinical centers since 1966, and publishes annual reports of the data. Cystic fibrosis is an important autosomal recessive genetic disease, affecting multiple body systems, with disability and early mortality as very common complications. RESULTS Observed data ...

developing a minimum data set for an information management system to study traffic accidents in iran

conclusions planning for the prevention of traffic accidents requires standardized data. as the foundation for crash prevention efforts, existing standard data infrastructures present policymakers and government officials with a great opportunity to strengthen and integrate existing accident information systems to better track road traffic injuries and fatalities. results an (mds) of a traffic ...